Dr. Patrick Allen

Dr. Patrick Allen is a specialist in rare disease advocacy at the Advocacy Center for Rare Diseases, leading a project to enhance advocacy efforts for Spinal Muscular Atrophy. His work includes developing advocacy strategies, collaborating with researchers, and implementing advocacy campaigns to strengthen support for Spinal Muscular Atrophy patients. Dr. Allen's approach emphasizes the importance of collaboration between patient advocacy groups and researchers to ensure that advocacy efforts are well-informed and impactful. He works closely with patients and their families to understand their needs and advocate for policies and programs that address these needs. Dr. Allen's dedication to advocacy has led to significant advancements in support for Spinal Muscular Atrophy patients, improving their quality of life and fostering a stronger community of advocates.